Update: four weeks since surgery (coping with cauda equina)

I can’t believe that it’s been four weeks since I had my operation.  In that time I’ve made regular visits to the hospital and have started to come to terms with the changes in my abilities.

What’s happened in four weeks?

  • My wound has nearly healed – just a little scar is all I have left on my back now.
  • I haven’t regained any of the sensation I lost in the back of my legs/feet etc.
  • I’ve failed my TWOC again (Google it!) but now I’m a drain on my NHS by self catheterising (with approximately £250 worth of single use catheters a month!)
  • I can hobble for short distances using the walking stick the hospital supplied
  • I caught my first UTI!
  • I’ve been signed off work until the middle of May on my latest hospital visit (I can’t drive yet or do lifting etc).

Compared to stories of many people who have experienced cauda equina syndrome I’m doing well.  The pain is manageable with pain killers and posture, and I have plenty more visits to the hospital planned for them to monitor my progress…  I’ve also found a great community on Facebook of CES sufferers that is a great source of strength.

Feel free to leave a comment if you have experience of cauda equina – I’d love to hear from you.

One thought on “Update: four weeks since surgery (coping with cauda equina)”

  1. hi rob,my name is bill and i got ces when i fell 17 ft. off a ladder.i ended up with a T-10 to L-3 fusion and a cage at L-2 to L-1. my bladder and bowels still don’t work and i got hurt on nov.22 2011. i walk about 1/4 mile daily.still have accidents sometimes and i plan my time out of the house around my b&b problems.lifes going good and maybe i make video of me going down a set of stairs…..hilarious,i look like a chimp on 2 legs.keep up the good work and don’t forget to exercise

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